It's been a stressful week. George was weighed at Plunket on Monday and had lost a significant amount of weight. He had gone from 10kg to 9.3kg. I was really concerned and contacted his dietitian to let her know. She made us an appointment for Wednesday (today) to see her at Wellington hospital.
In the meantime I stresssssssed out. We had finally found baseline for George but that meant he was only on formula. He wasn't getting enough calories. I felt hideously responsible and so guilty that my poor baby had been losing weight before my very eyes and I hadn't realised. It was a terrible couple of days. Luckily Blair realised I was close to breaking point and knew he needed to be at the appointments on Wednesday too. I'm so glad he was there to support me. This journey can be so overwhelming sometimes.
The dietitian calculated how much formula George needs per day and they have concentrated it to make it more calorific so he continues to gain weight. They validated my concerns that George was having reactions seemingly to all foods and said he can stay on just formula for another week til his gut has calmed a bit. I'm so relieved to have a proper plan, such good support and that Blair was there to hear everything too.
We then went to get an upper gi swallow done for George which involved him having to drink barium and then being x-rayed in different positions to see how his oesophagus and tummy were looking. George was such a star, the nurse said he was so calm during the procedure and was really impressed with him. I felt so proud of my little guy.
The doctor said it was all looking ok from the initial images but is sending it to George's paed who will follow up with us. Obviously they'll need to look at the images in detail to check that all is well in his gut. But from what he could see there weren't any twists. And that is excellent news!
I'm so glad it's all over. I'm just looking forward to getting George's gut healed so that we can start trialing food.
